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Pulmonary Hypertension is More Common Than You Know

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Okay, so many of you know that I have a type of pulmonary hypertension. Mine is called CTEPH, because it’s caused by blood clots from bilateral (both lungs) massive multiple pulmonary embolisms. CTEPH stands for Chronic Thromboembolic Pulmonary Hypertension. But just ordinary PH or PAH is actually a bit more common than you might think, and it’s possible YOU have it and don’t know. If you have heart disease, an enlarged heart, you might have PH and not know it and the PH could actually be causing the heart enlargement, particularly if the enlarged heart isn’t responding to ordinary treatment measures.Finding you you have PH and treating the PH might could improve and save your heart. And your life. (more…)

Tom Lantos Innovation in Community Service Awards

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Huff and Puff posterApplications due April 15, 2014

Overview

If you had $5,000 to do something to help the PH community, what would you do? This isn’t an empty question – it’s a real opportunity for you through the Lantos Awards.

Named for one of the true heroes of the PH community, the Tom Lantos Innovation in Community Service Awards seeks to create opportunities for those in the PH community to try out new ideas that hold the promise of more rapidly advancing our common cause cialis 10 mg filmtabletten preisvergleich.

Lantos Award project ideas might include, but are not limited to:

  • Increased public awareness
  • Education
  • Resource development
  • Advocacy
  • Other initiatives bringing benefit to the PH community

Timeline + More Details

Lantos Awards are made only once per year. Applications are due April 15, 2014. PHA will give as many as 10 awards of up to $5,000 each. Applicants may include a request for a schoalrship of up to $1,000 for PHA’s International PH Conference and Scientific Sessions.  Applicants will be notified of their status in May 2014. Projects should be completed within a 12-month period with an approximate start date of May 2014.

Watch “Recipe for a Successful Lantos Grant” to learn more.

Please refer to the program guidelines for more information.

 

Read about past winning projects

Read about the members of our community who were chosen to implement new awareness-raising initiatives and create new community services through the Tom Lantos Innovation in Community Service Awards program.

  • Donna Caterini’s “Huff and Puff” poster (pictured) used the story of the Big Bad Wolf to explain PH and promote local support group meetings.
  • Bonnie Patricelli and her son Ryan Juntti created 50,000 hot beverage cup sleeves designed and printed with a PH awareness message for the public. These “hot holders” were distributed around the country to coffee shops near high-traffic areas such as college campuses, train stations, and airports.
  • PHA Israel held an intensive one-day conference on PH for the medical, research and public health communities addressing PH diagnosis and treatment and the challenges of living with PH.
  • Steve Van Wormer produced four public service announcements (PSAs) for television and radio about PHA and PH issues. These spots have aired in broadcast media and have been shared through social media and shown at a variety of PH conferences.

Read more about the 2012, 2011 and 2010 Lantos Award winning projects.

Questions

If you have questions, or you’d like to brainstorm your project, please contact LantosGrants@PHAssociation.org.

This program is supported by an unrestricted educational grant from Gilead Sciences.

Identity

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On television, an episode of Dr. Phil was on, and I caught a comment where he asked a woman if her health had become her identity. That really stuck with me, because, you see, that is exactly what has happened to me. I haven’t written on this blog in a while, and there is a reason for that–I’ve been ignoring it, on purpose, because… you see, my health has become my identity. I’ve incorporated it into everything that I do in my life. I go to doctor’s appointments, and I post about it on Facebook. I’m feeling lousy and I message a friend of mine online and complain. I get a bad test result and I call my mother to whine and cry to her. I’ve even incorporated it into my writing, both here on my blogs and in one of my books, where one of the characters is dealing with a mystery diagnosis and the frustration of trying to get someone to listen to her and believe her, and how her illness is tearing things in her family apart. It’s not autobiographical–but sometimes, sometimes… sometimes, I fear it might be. (more…)

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