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S is for Sleep

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In the process of all the medical testing that was done on me, my doctors also sent me in to have a sleep study done. They believe that I have a sleep disorder of some sort–and with that, I am not disagreeing either–and that the sleep disorder is likely part of the cause of the problems I’ve been having–my body isn’t regulating properly, endocrine system out of whack, hormones out of whack, etc., and pulmonary hypertension is known sometimes to be caused by sleep apnea, and of course, it can worsen pulmonary hypertension too. So they sent me to have a sleep study. I went, I guess it was about two years ago now, and I was diagnosed with mild sleep apnea. Not many apnic events–only five the entire night–but I had multiple instances of hypoxia (oxygen saturation levels dropping low). Well, that’s normal for me, even when I’m awake, so it’s really hard to call that sleep apnea, when it happens when I’m awake. Would we call that ‘wake apnea’? Nah, they just call it pulmonary hypertension.

Anyway, I know the docs are grasping at straws and looking for reasons. Hell, truth be known, they’d rather find out my PH is caused by sleep apnea than CTEPH, ’cause, well, CTEPH is usually terminal and sleep apnea rarely is. One is treatable, the other, not so much.

I’d be very happy if sleep apnea were the answer to all my problems. (more…)

R is for Respiration

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I said I was going to finish this challenge, even if it took me longer than a month to do it, so here I am, almost a month after the challenge ended, trying to finish the last of this blog challenge. I’ve only got R-Z left, so here we go. R is for Respiration–breathing. If we don’t respire, we expire. I’d much rather respire, indeed. A lot of folks don’t know this about me, and a lot of folks do, but I think that most of the time, people don’t really think about the differences we have. If someone were to picture me in their heads, I seriously doubt they would see me the way I really look most days: my hair piled on top of my head, no makeup, wearing a nightgown most of the time (I rarely dress any more–but I have these cute night dresses I wear around the house most of the time–I love ’em!), barefoot, and wearing my oxygen cannula.

Yes, oxygen cannula. (more…)

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