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I Shaved My Legs

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A few years ago (like, oh, I dunno, fifteen years ago or something, but when you start getting old, that’s a ‘few’, really, it is) I worked as a crisis hotline volunteer for the Odessa Rape Crisis Center. In order to do that volunteer job, I had to go through a 6-week training class they offered, with a big notebook full of information and such. During that training, we were taught how to answer the phones, how to talk to rape victims and what to do in emergency situations. We had notebooks and classes and we did scenarios and pretended to be callers and phone operators and all that stuff.

I don’t honestly remember much about the entire training, but there was one part that really stuck with me. They had a girl who was working as a rape crisis advocate at the time come in and talk to us. She stood at the front of the room and told us that she was a rape survivor. She talked about how she had felt, how depressed she got, and how in the middle of the night one night she called the rape crisis center and how helpful they were to her. When she finally was able to move past her trauma, she decided to volunteer too, because she wanted to give back to someone else what the center had given to her.

What she said to us was that she knew she was going to be okay when she went to her counselor and said, “Guess what, Nancy? I shaved my legs today!” (more…)

Frustration, And More Frustration

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Carnival Cruise Lines Can Suck My Big Toe

So, the first thing that happened, and I’ll be writing more about this in the future, Carnival Cruise Lines decided that my bilateral massive multiple pulmonary embolisms and the both extremity cellulitis infection that left me with open wounds and abscesses on both legs was not ‘worthy’ of being given an exception for cruise reimbursement. We asked not for our money back on the cruise, but rather, we asked that they simply give us a credit for the cruise–for which they were, by one of their own employee’s admissions–able to rebook our cabin. We intended to use the credit on a future cruise, during which we would have spent more money than the credit we had with them. But Carnival Cruises decided we were not important enough as a customer to keep our business and held firmly to their ‘contracted’ agreement, and refused to refund or credit us any money in their special ‘consideration’ department.

Well, let me tell you what that means for me: I will never, EVER cruise with Carnival again. I also intend to make sure everyone I know hears just how ‘unvaluable’ Carnival thinks its customers are. We lost $2000 during a time when because of the health problems we could have really used that money and we never even asked for it back – we just wanted a credit so we could take a cruise at a later date when my wounds had healed and I had recovered some. I could have really used the vacation.

I hear Disney cruises out of Port Galveston too, as do Norwegian and one other line. When we’re ready to cruise later in the year, anyone but Carnival will get my business. If you plan on cruising, keep in mind Carnival will provide you with the best customer service as long as they are still trying to get your money. Once you’ve parted with your money though, they took weeks to even answer my request and then very blanketly denied the special consideration with absolutely zero explanation other than they didn’t want to honor our request, so sorry, buy trip insurance next time. Well, if anyone had offered us trip insurance, perhaps we would have. (more…)

Sleep Study Results

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I mentioned I would post the results of my sleep study the other day too, and I never did do that.

So here’s what the doc said on the sleep study:

I have mild to moderate sleep apnea, with about 30 apnea episodes over an almost eight hour sleep period. However, I had nearly 80 hypopnea episodes over that same period, meaning about 50 of the hypoxic times had nothing to do with obstruction or apnea, but rather, with an underlying pulmonary condition that should be ‘correlated clinically’.

Around 10pm, about an hour into my sleep cycle, I dropped sats to 85 and stayed there for five minutes. The protocol is to start oxygen if that happens, so he started me on one liter per minute, but it only came up to 86, then moved me to 2 liters per minute, and even then, I spent over 90% of the night with my sats below 90%. Remember, now, anything below 92% can cause organ failure or damage.

So yes, I have a sleep disorder, based on a pulmonary condition, but we don’t know what that is yet… or at least, they didn’t. We kinda do. (more…)

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